Local family launch rare epilepsies charity

June 12, 2024 9:07 am in by

Australia’s first charity to help families with Dravet Syndrome has been launched by an Irymple couple.

Daniel and Bianca Coghlan’s daughter Skyler was diagnosed with the rare form of epilepsy when she was a baby, suffering hundreds of seizures in her three years.

They’ve created Little Sky Eyes Foundation.

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There’ll be an awareness day during the Round 11 clash between Irymple and Red Cliffs on June 22nd.

Details can also be found at